14 July 2014

Scrambled whistle-stop update

A few people have asked how things are as I've been a bit silent lately, so here goes...

Am having increased cognitive difficulties with typing and working out what to say/how to say it - hence v v badly written post and lack of proper explanations of things - sorry! And have been less able to keep in touch with people by email/text/fb etc lately - sorry for that too! Not good as typing is my main method of communication with most people - phone and in person is v difficult and

The devastating reality of severe ME

I'm not even sure how to introduce this. If you are in any doubt about how severe and progressive ME can get for some people, click the link below to read a post from someone in the final stages of their ME journey. I don't know what my future holds or when/why I will be in my final days; I can only hope that, when my time comes, I face it with the grace and courage that she is showing. She is a huge inspiration to me.


1 July 2014

Sad endings and hopeful new beginnings...

Sad endings...
Today we had the last ever session with our Home Start worker, Teresa. For the last six months she's been visiting once a week to play with my daughter, E, so that I could watch E play - something I really miss. E gets lots of fun and stimulation at pre-school and out with friends of mine, but I don't get to see it; having visits from Teresa has been wonderful. She has given us priceless memories, and has been very encouraging and supportive to me. I can't really believe her time with us has come to an end. We bought her some flowers, and my husband helped me make